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Halloween Party!

Grammy made chocolate covered marshmallow suckers for both of Brooklyn’s classes today and Granny (one of her aides) helped her pass them out!Brooklyn and Miss Stephanie (painting of some sort I think?)Cupcakes for snack today!Brooklyn giving her 1st grade teacher her pumpkin sucker :)Brooklyn was a “skela-cutie today :)

My little lion!

It is way too cold to bundle up and go out Trick or Treating tonight but we had this ADORABLE lion costume that was handed down from Jackson so we had to at least put it on and play!He was really more interested in the Wiggles that were on TV.Does this say “come on mom, […]

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I know you all have missed my Boston updates…I apologize….It has been a little insane around the house with Brooklyn starting seizures :(Here is a cute one for you….my little man LOVES his baths! He just looks so sweet in this one I thought- had to share!

Seizures

For the past four years since our Rett Syndrome diagnosis I considered us one of the “lucky ones.” I watched as many of the other girls struggled day in and day out with seizures – listened to their mommies (my dearest friends) cry and yell out of frustration. I could listen and encourage them but […]

Boston Walking

I have not loaded any videos of Boston walking yet….he is doing SO GREAT now – he is ALL over the place so I figured it was past time to share it with all of you!

Video Slideshow from our GP2C Rockin’ for Rett Angola!

3rd Annual Rockin’ for Rett – Angola, IN – 10.15.2011 from Girl Power 2 Cure on Vimeo.

EEG results

Grammy and Brookie dancing :) We finally met with the neurologist this afternoon to go over the results of our 72 hour video eeg. The recording captured seven “episodes.” Two of the five episodes were determined to be seizures – these were the “big” ones I talked about where she goes very stiff – then […]

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Join us Saturday Night!!!

72 hour video eeg

We are now in our final 24 hours of the 72 hour video eeg.We have caught a couple of the episodes on video which is good – today we caught the worst one I have ever seen. It is good that we got in on film but horrible to watch Brooklyn go through it. The […]