We are absolutely LOVING this crazy Indiana Spring weather! Even though Brookie is still not feeling quite herself, we were able to get out and enjoy some sunshine this weekend! THANK GOODNESS – a person could go crazy being locked up too long….I think I was well on my way!
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About Me
I am an ordinary mom with two extraordinary kiddos. My daughter Brooklyn is 11 and has Rett Syndrome and is the first special love of my life. My son Boston is 7 and has Down Syndrome and Autism - he also happened to enter this world 10 weeks early, weighing only 2.3 lbs!
I often here the words "You have your hands FULL!" I like to remind people that "you should see my heart!"
This blog is a little look into my life as a special mommy (x2) I hope you enjoy your time here!
Sites I LOVE
- About Special Kids
- Army of Us
- Baby Be Blessed
- Down Syndrome Footprint
- Down Syndrome of Northern Indiana
- Girl Power 2 Cure
- International Down Syndrome Coalition
- Linda Burkhart – RS Communication
- More With Music
- Rett Girl
- Rett Syndrome Research Trust
- Something Special Magazine
- Teaching Learners with Mulitple Needs
Recent Comments
- Kelly on Love & Awareness for DS/ADS
- Elisa Farmer on Love & Awareness for DS/ADS
- How to tell a family their daughter has a Rett Syndrome diagnosis: A message to all doctors and genetic counselors - Army Of Us Blog on Not your typical Down Syndrome “birth day”
- Tommie on Waiting….
- Birthday Boy on Boston Clark Butler Has Arrived!
Ok, about the binky, I must share our experience. When QueenBee was 1 I decided to get rid of the ‘bati’. I had seen ‘too many’ older kids running around with those things hanging out of their mouths. So we took it away and after three days of restlessness she seemed to move on.
Then her Rett Syndrome regression hit and it turns out she needed a lot more oral stimulation than a typical child. She used her ‘lamby’ doll and chewed it to bits and that was fine but I always wondered if my strict, parent-driven decision was helpful to what she needed.
I let my other two kids have them til whenever and they eventually let them go around 2 years old (they did, however, hide them along the bedrails to use at night, which was fine for awhile– when I found them they would give me that little sneaky grin).
So, there you go. Just my experience. He won’t be taking it to Kinder so tell him one-row said to to live it up!
I like your thinking on the binky!
I’m with the first commenter regarding binkies. If it gives him comfort, why rush getting rid of it? Seriously? My older daughter, a typical child in every way, had a bottle until she was three years old. We switched it from milk to water when she was two, hoping she’d give it up on her own. No way. She’s nine now and there are no signs that she had a bottle every night until she was three. When he’s ten years old, who is going to know how old he was when he gave up the binky?
My younger daughter, the one with 5p- syndrome, sucked her thumb until she was almost five (she just gave it up, on her own, about six months ago) and while there were times when I worried that she’d be sucking that thumb when she was twenty, I remembered how it was with A’s bottle and gave up trying to control it. She needed the oral stimulation and it gave her a lot of comfort.
This is my long-winded way of saying that every parent is different and so is every child. If you want him to give up his binky, no one should judge you for it. But if you don’t care if he still has it, no one should judge you for that either.
Thanks Tommie – I agree – his early intervention people worry that that is one of the reasons he is not talking….I am trying to “limit” the binky use during the day – naps and bedtime only :)
Oh my goodness I do love the E.I. people but sometimes their worries make me laugh. Olivia’s first developmental therapist (here in Steuben county) was just worried sick that Olivia was so oral. Olivia was ONE YEAR OLD! Aren’t all one year old’s oral? They chew on everything, that’s why they make toys especially for the three and under crowd.
Anyway! Our PT (she was from Huntington county, we were lucky that we could draw therapists from both counties since I lived in Huntington at the time but worked up here and O was in daycare or with her Gram most days) kept saying that when Olivia was strong enough to stand up and walk, she’d be strong enough to talk. She started talking about six months after she started walking. She walked at 29 months and started seriously talking just before she turned three. For what it’s worth. :-)
Boston hasn’t been walking independently that long, has he? I think he’s doing great and that you are doing everything you can to help him reach his fullest potential. Isn’t that what we all want for our kiddos?
I can see why people mistake him for his sister in some pictures… he has a beautiful face! He is just the cutest!!