I put the above collage together for Autism Awareness Month but of course with Boston’s Duel Diagnosis I am re-sharing for Down Syndrome Awareness Month too! Also – I created a facebook album of all of his “Daily Line Up” pictures too ! (Click HERE to view them)
Down Syndrome (& Autism) Awareness
While it is Down Syndrome Awareness Month I think it is VERY important to educate everyone about having BOTH Down Syndrome and Autism. I knew early on that Boston had other issues going on besides Down Syndrome but to be honest I thought we were just dealing with “preemie” issues. When a kiddo comes 10 […]
Awareness Month Can Start Now!
These little cards arrived JUST in time for Rett Syndrome and Down Syndrome awareness month!!! In the past I’ve carried around two individual awareness cards – one for each kiddo. I had purple cards for Brooklyn and separate blue cards for Boston. Now I have ONE card of awesome! Brookies info on one side and […]
WARNING: Awareness is about to happen!
It is ALMOST October. Which means it is ALMOST Down Syndrome Awareness Month AND Rett Syndrome Awareness Month!!! I plan on blogging EVERY SINGLE DAY. You will hear great facts and stories, you will get updates on research and of course see super cute pictures of my kids like this: It is my month […]
6 years of Boston AWESOMENESS!!
Tomorrow this sweet boy turns 6, we won’t have a party because too much noise, unwrapping gifts and the chaos that a party can bring is just too stressful for him (heck, the last “birthday party” we had for him ended with us BOTH crying!) But you can be sure he WILL be celebrated!!! I […]
Gotta start somewhere…
Boston turns six in less than a month and we are no where near being potty trained. This is actually pretty common in the autism community as well as in the Down Syndrome community. As far as kiddos with both I’ve heard mixed reviews: in one of the Facebook groups I am in there are […]
How do I explain?
I witnessed a tough moment the other day – an interaction between my kiddos…..and it broke my heart. Boston requests a drink or food with PECS (a photo of his cup or bowl.) He either pushes the button under the photo and it speaks the words for him “May I have something to drink please?” […]
World Down Syndrome Day
Yesterday was World Down Syndrome Day! Why March 21st? (3.21) Because of the three copies of the 21st chromosome which is unique to individuals with Down Syndrome. I am blessed to have a couple amazing friends that are way more tech savvy and they helped me with the images below (thanks again James and Duncan!) […]