Tubie Tips
I wanted to share one of my favorite “tubie” items with you. It is my grass drying rack. I know some of my mom friends that have babies probably have one of these and love them for all of their baby bottles! I actually do use it for more than just G-tube supplies, I dry […]
Confession of a special needs mom: “I am a bad friend.”
As a special needs mom I have read quite a few articles like this and even shared a few but this by far is my favorite so far. Please read the article before continuing on with this blog post:) I want to take a moment to thank my “typical” friends that have not given up […]
“Boston Cards”
Most of you know all about the GP2C “Purple Cards” we have for Brooklyn that explains Rett Syndrome, they are life savers for us when we are out and about and people have questions about Brookie or when we are at a new doctor or in the hospital – it is a rule of mine […]
Awareness Month
I have had a few people ask me about some of the photos I had on facebook throughout October so I thought I might do a quick blog post and include them all here. I hope you enjoy them!
How do you do it?
Lately, (maybe since it is Awareness month and I am talking about Down Syndrome and Rett Syndrome more) I have had quite a few people ask me “How do you do it?” Which reminded me that back in 2010, I had a friend that was doing a series of blog posts about “How do you […]
Making Choices
Many of you who follow this blog know that Boston is non-verbal. We currently have no real form of communication. We guess, a lot. He yells a lot. We have a couple “basic” things- he knows where his cups are stored and will go near them (and sometimes yell) letting us know he is thirsty. […]
My Superheroes
I want to take a moment and honor the two little superheroes in my life….Boston and Brooklyn. These little loves of mine truly fight BIG battles each and every day. Boston as he tackles the duel diagnosis of Down Syndrome and Autism. He fights feeding difficulties, GI issues, sensory processing, cognitive disabilities, fine motor skill […]
Guest blogger, Gillian Marchenko
I am HONORED to have Gillian as a guest blogger today. For those of you who know me, know that I am NOT much of a reader but when I heard whisperings about this book, I knew I HAD to read it – and I am SO glad I did. From the moment I read […]
It is Awareness Month!!
October is Rett Syndrome Awareness month. It also happens to be Down Syndrome Awareness month. I plan on blogging quite a bit this month with great information about both in hopes that it not only helps raise awareness and educates but also honors my kiddos. Boston who has Down Syndrome (and Autism) and Brooklyn who […]
If only I could hear your voices…..
Thanks to my cousin Patricia , I have found a new blogger that I love. Her name is Jo Ashline and from the small amount of time that I have spent on her blog in the last 24 hours, I think I have found a new friend ;) Some of you might have read her […]
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