Rett Syndrome

left hip out of socket

Surgery Update

Yesterday Jon, Brooklyn, and I spent the day in Chicago at Shriner’s Children’s Hospital taking care of all the pre-op that needed to be done before her surgery next Wednesday. We met with a nurse, a pediatrician, a ortho resident, a child specialist, a social worker, a dietitian, and her surgeon – she has quite […]

Garden of Hope Project

April is just around the corner and that means Autism Awareness Month! One of the projects that Girl Power 2 Cure takes on all year long (but focuses on in April) is the Garden of Hope project! Check out the video to learn more. Also, for my local friends, be sure to thank John Sutton […]

Spring?

Spring?

We are absolutely LOVING this crazy Indiana Spring weather! Even though Brookie is still not feeling quite herself, we were able to get out and enjoy some sunshine this weekend! THANK GOODNESS – a person could go crazy being locked up too long….I think I was well on my way!

She might be sick but she is still sporting her "IRISH" bling :)

sleeping beauty

It has been a LONG three weeks. Brookie first went to the doctor while I was down in Orlando for the 1/2 marathon…since then we have been back to her peds doc three times, and to her Neuro and GI, endured two rounds of x-rays, blood work, and now are attempting into get stool samples […]

Garden of Hope for Rett Syndrome

Garden of Hope for Rett Syndrome from Girl Power 2 Cure on Vimeo.Hey Blog readers…..have you been wondering how YOU might be able to get involved with raising some money for Rett Syndrome research (with little work for you!?)  THIS is your chance!The Garden of Hope project is SO easy! Watch the video then click […]

The Disney Princess 1/2 Marathon (running for Rett Syndrome!)

I DID IT!!! I completed my very first 1/2 Marathon!!! I have to admit, I was not sure I could tackle this goal – but when Girl Power 2 Cure decided to have a team and raise money (and LOTS of awareness for Rett Syndrome – well…..that was the motivation I needed!) Here I am […]

the famous purple card ;)

GUESS WHO has one of these amazing purple cards???? Dr. OZ! A friend and fellow Rett mommy met him last week while he was taping a news segment and she gave give him one of her daughter’s cards and one of Brooklyn’s! THEN…..he asked for a phone number of someone at Girl Power 2 Cure […]

My reason to run

I have lots and lots of pictures to share of my 1/2 marathon weekend. I am still recovering so that post will have to wait. I do however want to post this one now. Because it is my favorite one. Brooklyn is the reason I participated on Team GP2C for the Disney Princess 1/2 marathon. […]

Bdubs!!!

JOIN US next Wednesday at Buffalo Wild Wings!! Click on the picture to print out the flyer to take with you on Wednesday!

Professor Adrian Bird

Professor Adrian Bird needs no introduction to anyone who follows Rett Syndrome research. His list of accomplishments includes discovering the MeCP2 protein, developing multiple animal models for the disease and authoring the seminal 2007 Science paper…Prof. Bird was a guest of honor at the Reverse Rett London event and made the following remarks. He touches […]