My new swing is AWESOME!

We really need to do something about this sun….but I LOVE my new swing set! Thanks again dad for building it for me!

Happy Father’s Day Daddy!!!

Daddy and me on Father’s day! We took daddy out for breakfast and then I napped on the way home. This afternoon we hung out at Aunt Kristin’s Pool. Daddy, Even though I am little and can’t express myself with words…I hope you know how much I love you! You make me giggle when you […]

Our first swim in Jackson’s NEW pool!

Mommy and me We all had fun at Aunt Kristin’s pool party! I relaxed in the sun for awhile. This is my new float I got for my birthday! Thanks Jackson & Aunt Kristin, Grammy & Pappy, Josh & Jordan, Knox’s, and Gaerte’s we had a GREAT time hanging out today!!!


I know 3 posts in one day is A LOT but….I just was emailing my cousin back and it prompted me to blog once more. She was praising me for my strength and telling me how wonderful I am. Many of you reading this have and I THANK you all so much for your kind […]

My Kentucky Buddies

Jonah Grace, Noah, & Faith My mommy’s college friend Shannon sent her these cute pictures of her kids! I can’t wait to meet them, hopefully this summer!

Two angels in the same small town!

Last night I had a long chat with another Rett mom…….HERE IN ANGOLA!!!It is kind of ironic that it takes hours, days, or even months to find people (and even doctors) that are familiar with Rett Syndrome and suddenly I am on the phone talking with a mom that lives 15 minutes from me! AMAZING! […]

Big Girl in Daddy’s seat!

I love Daddy’s “Big” computer chair, especially when we can talk him into playing Wiggles songs on his ITunes! (Like my pig tails?)

An SUPER easy way to support Rett Research!

Do you search the Internet occasionally? OK……daily?If so, you can help raise money for Rett Syndrome research! Simply go to http://www.goodsearch.com/ In the middle of the page you will see this:WHO DO YOU GOODSEARCH FOR? This is where you type in “Rett Syndrome Research Foundation” and click the verify button. Now…search the Internet using this […]

Socks for AFO

For all Rett moms: These are the socks that Brooklyn uses with her orthodic’s (She wears the Jumpstart orthodics set from Cascade); they work great! They are a bit pricey but as we all eventually find out….you get what you pay for. We LOVE them. They are seamless so they don’t bug her and they […]

Rett Update

The Keppra that they have prescribed for her seizures seems to be helping a bit but she is SO sleepy that it has been hard to tell how effective it is really. Sometimes I feel that she is so tired that I can’t tell if she is having a seizure for sure. I have talked […]